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Ultragenyx Pharmaceutical, founded in 2010, is a biotechnology company that specializes in bringing products to market to treat rare, ultra-rare, and serious ge
Senior Director, Patient Advocacy, Engagement
Location
United States
Posted
32 days ago
Salary
$247.2K - $305.3K / year
Seniority
Senior
Job Description
Senior Director, Patient Advocacy, Engagement
Ultragenyx Pharmaceutical
• Build and steward authentic relationships based on respect, understanding and advancing patient focused priorities. • Embed patient and caregiver perspective and strategic insights from our communities across business strategy, accelerating existing efforts and identifying new opportunities to meaningfully partner across the medicines lifecycle. • Understand and navigate internal stakeholder engagement, ensuring plans reflect cross functional engagement; facilitating the compliant exchange of complex scientific information related to Ultragenyx areas of research, product development and commercialization. • Partner closely with Government Affairs, Communications and Regulatory to ensure appropriate patient, caregiver and advocacy leader awareness of, and engagement with, regulatory agencies and policymakers on issues of access and reimbursement. • Demonstrate leadership within the Patient Advocacy team, across Ultragenyx, and externally with the goal of fostering a best-in-class patient advocacy function. • Oversee the patient advocacy budget, ensuring company resources are used efficiently and effectively, including the management of external strategic partners.
Job Requirements
- 10+ years within the biotechnology/pharmaceutical industry
- 10+ years of patient advocacy experience; rare disease experience preferred
- Bachelor's degree is required
- Experience with working with patients, caregivers and advocacy groups across the medicines lifecycle
- Ability to summarize and communicate complex medical and scientific information using terms and concepts that are most relevant, understandable, and appropriate for rare disease communities
- Able to think strategically, with extensive tactical planning and execution experience
- Excellent verbal, written, and presentation skills (internal and external)
- Extensive knowledge of all appropriate regulatory, compliance and legal requirements
- Ability to travel 25%
Benefits
- Generous vacation time and public holidays observed by the company
- Volunteer days
- Long term incentive and Employee stock purchase plans or equivalent offerings
- Employee wellbeing benefits
- Fitness reimbursement
- Tuition sponsoring
- Professional development plans
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