Key Account Manager (KAM) - Rare Disease - Pediatric Endocronology (North, South, East, West)
Location
United States
Posted
100 days ago
Salary
0
Seniority
Lead
No structured requirement data.
Job Description
Key Account Manager (KAM) - Rare Disease - Pediatric Endocronology (North, South, East, West)
Egetis Therapeutics AB
About Egetis Join us in bringing novel therapies to patients with rare diseases. At Egetis Therapeutics we challenge the status quo for the benefit of those in need. We offer an open, positive and supportive culture where everyone can be at their best. As an employee you are empowered and encouraged to have an entrepreneurial spirit, enjoying an organization with conscious and efficient decision-making. Through trust, we work seamlessly across functions and take pride in our collaborative working environment! Our vision is to bring unique therapies to patients with rare diseases that extend and improve quality of life. Our focus is on projects in late-stage development for commercialization of treatments for serious diseases with significant unmet medical needs in the orphan drug segment. In February 2025, the European Medicines Agency approved Egetis’ Emcitate® (tiratricol) as the first and only treatment of peripheral thyrotoxicosis in patients with monocarboxylate transporter 8 (MCT8) deficiency (Allan-Herndon-Dudley Syndrome.) In November 2025, Egetis reported positive topline results from the ReTRIACt study of tiratricol in patients with MCT8 deficiency – the final study supporting registration. Following a productive pre-NDA meeting and a Breakthrough Therapy Designation, Egetis began a rolling NDA submission in December 2025, with completion targeted for early 2026 and a potential FDA decision in Q3 2026 (pending Priority Review). As a committed, courageous and collaborative organization, we are seeking to grow our team to drive success both in the pre-launch and post launch phases of our anticipated US approval. For more information, please visit our website at www.egetis.com or follow us on LinkedIn and Instagram and Facebook Position Summary The Key Account Manager (KAM) plays a vital role in advancing Egetis’s mission to bring transformative therapies to individuals living with rare diseases. Operating within a small, agile, and resourceful organization, the KAM will help drive the successful U.S. launch and commercial growth of Egetis products. In this highly visible and strategic role, the KAM serves as the business leader for their territory—partnering with healthcare professionals and treatment centers to increase disease awareness, identify patients, and facilitate access to therapy. Key customers include Children’s Hospitals with a focus in Pediatric Endocrinology, Pediatric Neurology, and Genetics. Success in this position requires an entrepreneurial mindset, strong account management skills, and the ability to navigate a dynamic environment with limited resources. The KAM will collaborate cross-functionally to execute launch plans, provide insights that shape commercial strategy, and deliver meaningful impact to patients and the communities they serve. - Bachelor’s degree required - 10+ years of pharmaceutical or biotech sales experience required - Experience in rare or ultra-rare disease is required with demonstrated ability to navigate very low-prevalence, low awareness markets. - Prior first-launch or early-stage biotech experience is preferred - Experience with selling in Children’s Hospital’s, pediatric endocrinology and/or neurology is preferred - Proven success operating independently within a large geographic territory with limited resources, acting as a primary business owner for the region - Strong clinical understanding and ability to engage credibly with academic specialists - High level of comfort with ambiguity, travel intensity, and direct leadership exposure - Patient centric with high ethical standards - Demonstrating a high level of cross functional collaboration. - Solid understanding of US legal, regulatory and compliance requirements Travel Requirements - Up to 60–70% travel due to large territories - Identify, prioritize and establish deep relationships with target pediatric endocrinology and neurology centers and referral sites for Egetis product, including leading the transition of patients from early access to commercial product - Execute pre-launch and launch activities across assigned targeted HCP and accounts to driver appropriate awareness, adoption and sustained utilization of Egetis therapies. - Lead disease state education efforts, including diagnostic testing, across all customer stakeholders in a very low-prevalence and low-awareness market environment - Lead comprehensive patient finding/identification efforts by combining targeted disease education, sophisticated use of ICD-10/CPT Code and claims/EMR data and navigation of complex HCP referral patterns - Develop and execute detailed territory plans including individual key customer strategies and tactics, leveraging data and insights to continuously refine priorities and resource allocation. - Position Egetis as a long-term partner withing the rare diseases community. Educate all customer stakeholders on the services and support that Egetis provides to accounts and to the patient community, including but not limited to market access support, patient services programs and disease education initiatives. - Demonstrate cross functional leadership by working closely and collaboratively with Marketing, Medical Affairs, Market Access, Patient Services, Business Operations and Senior Leadership - Provide rapid, structured field insights to shape launch strategies, materials, and support programs and actively participate in internal decision making forums to inform strategy, well beyond traditional sales responsibilities - Own territory business performance by tracking and managing key metrics (e.g., patient starts, account activation, and other agreed KPIs) and maintaining accurate, timely documentation in CRM and other reporting tools. - Help establish field norms and launch playbooks for the organization - Maintain high compliance standards despite startup pace and ambiguity
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