Bionews, Inc.

Job Opening Details: Bionews, a digital news company dedicated to creating communities for patients with rare and chronic diseases and their caregivers, is looking for members of the Prader-Willi syndrome (PWS) community to join our freelance staff of caregiver columnists on Prader-Willi Syndrome News. A Bionews columnist is a patient or caregiver who shares about life with a rare or chronic disease. They write personal essays in a column format to inform, inspire, empathize, and advise. Their audience includes patients, caregivers, medical teams, and researchers. Columnists also write to a general audience interested in learning how to improve society's understanding and treatment of disease/disability communities. All columns are reviewed with a critical eye by professional editors who will work with columnists to smooth rough spots and help the columnist grow as a writer. This is a contract position. Please note you MUST be a caregiver of the Prader-Willi syndrome community in order to apply for this position. Responsibilities and Duties - Fulfill 1x weekly deadlines as agreed upon on hire. - Communicate efficiently with your managers and editors. - Submit 400-800 word drafts that adhere to Bionews policies and procedures. - Aside from exceptions, drafts should not take more than 45 minutes to edit. - Fulfill revisions as requested by editors in a timely manner. - Complete training assigned by Bionews HR. Experience Required - Prior experience with writing for an audience. - At least three months’ direct experience with caring for someone with Prader-Willi syndrome. - Caregivers must be direct relatives, guardians, or spouses. Experience Preferred - Experience in being professionally edited for publication. - Experienced in generating a blog or column. - Participation in support groups, internet forums, or community groups relevant to Prader-Willi syndrome. Knowledge Required - Fundamentals of how Prader-Willi syndrome works. Knowledge Preferred - The content needs or wants of the Prader-Willi syndrome community. Skills Required - A swift and independent learner of Internet technology. - A creative mind capable of regularly generating unique content that appeals to target audiences. - Time management. - Advanced creative writing. Skills Preferred - Experience in using WordPress for content creation. - Experience with the Slack communication app. Abilities Required - Internet access and use. - Native or fluent English writing and reading abilities. Who is Bionews? Bionews is a leading online health, science, publication, and research company with one purpose: to serve patients with a rare or chronic disease. We do this by connecting them with current, trusted, and relevant news and information. This content is delivered regularly and provided by actual patients as well as professional journalists, writers, editors, scientists, and experienced media executives. Our end customers are truly patients living with rare and chronic diseases. Visit www.bionews.com for more information. Bionews Vision To empower, inspire, and champion the patient voice as the preeminent resource that engages, informs, and connects the global rare and chronic disease community. Bionews Purpose We connect rare and chronic disease communities by providing a unified and distinctive space to engage, educate, and empower those affected by rare diseases to help improve patient health and quality of life. Values: R.A.R.E. - RESPONSIBILITY - ADVOCACY - RELATIONSHIPS - EMPOWERMENT

Job Opening Details: Bionews, a digital news company dedicated to creating communities for patients with rare and chronic diseases and their caregivers, is looking for members of the Bardet-Biedel syndrome or acquired hypothalamic obesity community to join our freelance staff of patient and caregiver columnists on Rare Obesity News, launching in May. A Bionews columnist is a patient or caregiver who shares about life with a rare or chronic disease. They write personal essays in a column format to inform, inspire, empathize, and advise. Their audience includes patients, caregivers, medical teams, and researchers. Columnists also write to a general audience interested in learning how to improve society's understanding and treatment of disease/disability communities. All columns are reviewed with a critical eye by professional editors who will work with columnists to smooth rough spots and help the columnist grow as a writer. This is a contract position. Please note you MUST be a member of the Bardet-Biedel syndrome or acquired hypothalamic obesity community in order to apply for this position. Responsibilities and Duties - Fulfill 1x weekly deadlines as agreed upon on hire. - Communicate efficiently with your managers and editors. - Submit 400-800 word drafts that adhere to Bionews policies and procedures. - Aside from exceptions, drafts should not take more than 45 minutes to edit. - Fulfill revisions as requested by editors in a timely manner. - Complete training assigned by Bionews HR. Experience Required - Prior experience with writing for an audience. - At least three months’ direct experience with having or caring for someone with Bardet-Biedel syndrome or acquired hypothalamic obesity. - Caregivers must be direct relatives, guardians, or spouses. Experience Preferred - Experience in being professionally edited for publication. - Experienced in generating a blog or column. - Participation in support groups, internet forums, or community groups relevant to Bardet-Biedel syndrome or acquired hypothalamic obesity. Knowledge Required - Fundamentals of how Bardet-Biedel syndrome or acquired hypothalamic obesity works. Knowledge Preferred - The content needs or wants of the Bardet-Biedel syndrome or acquired hypothalamic obesity community. Skills Required - A swift and independent learner of Internet technology. - A creative mind capable of regularly generating unique content that appeals to target audiences. - Time management. - Advanced creative writing. Skills Preferred - Experience in using WordPress for content creation. - Experience with the Slack communication app. Abilities Required - Internet access and use. - Native or fluent English writing and reading abilities. Who is Bionews? Bionews is a leading online health, science, publication, and research company with one purpose: to serve patients with a rare or chronic disease. We do this by connecting them with current, trusted, and relevant news and information. This content is delivered regularly and provided by actual patients as well as professional journalists, writers, editors, scientists, and experienced media executives. Our end customers are truly patients living with rare and chronic diseases. Visit www.bionews.com for more information. Bionews Vision To empower, inspire, and champion the patient voice as the preeminent resource that engages, informs, and connects the global rare and chronic disease community. Bionews Purpose We connect rare and chronic disease communities by providing a unified and distinctive space to engage, educate, and empower those affected by rare diseases to help improve patient health and quality of life. Values: R.A.R.E. - RESPONSIBILITY - ADVOCACY - RELATIONSHIPS - EMPOWERMENT

• Build and maintain strong relationships with clients, acting as their primary point of contact throughout the entire campaign lifecycle from pre-sale to post-sale. • Collaborate with Sales and Marketing teams on RFP responses, developing tailored campaign proposals that align with client objectives and deliver measurable results. • Partner with Editorial, Ad Ops, Audience Growth, and Performance teams to ensure campaigns are executed flawlessly, delivered on time, and exceed brand KPIs. • Monitor campaign performance, analyze key metrics, and provide insightful wrap reports to client partners. • Identify opportunities for upselling to drive business growth and retention.

Job Opening Details: Bionews, a digital news company dedicated to creating communities for patients with rare and chronic diseases and their caregivers, is looking for members of the Pompe disease community to join our freelance staff of patient and caregiver columnists on Pompe Disease News. A Bionews columnist is a patient or caregiver who shares about life with a rare or chronic disease. They write personal essays in a column format to inform, inspire, empathize, and advise. Their audience includes patients, caregivers, medical teams, and researchers. Columnists also write to a general audience interested in learning how to improve society's understanding and treatment of disease/disability communities. All columns are reviewed with a critical eye by professional editors who will work with columnists to smooth rough spots and help the columnist grow as a writer. This is a contract position. Please note you MUST be a member of the Pompe disease community -- patient or caregiver -- in order to apply for this position. Responsibilities and Duties - Fulfill 1x weekly deadlines as agreed upon on hire. - Communicate efficiently with your managers and editors. - Submit 400-800 word drafts that adhere to Bionews policies and procedures. - Aside from exceptions, drafts should not take more than 45 minutes to edit. - Fulfill revisions as requested by editors in a timely manner. - Complete training assigned by Bionews HR. Experience Required - Prior experience with writing for an audience. - At least three months’ direct experience with having or caring for someone with Pompe disease. - Caregivers must be direct relatives, guardians, or spouses. Experience Preferred - Experience in being professionally edited for publication. - Experienced in generating a blog or column. - Participation in support groups, internet forums, or community groups relevant to Pompe disease. Knowledge Required - Fundamentals of how Pompe disease works. Knowledge Preferred - The content needs or wants of the Pompe disease community. Skills Required - A swift and independent learner of Internet technology. - A creative mind capable of regularly generating unique content that appeals to target audiences. - Time management. - Advanced creative writing. Skills Preferred - Experience in using WordPress for content creation. - Experience with the Slack communication app. Abilities Required - Internet access and use. - Native or fluent English writing and reading abilities. Who is Bionews? Bionews is a leading online health, science, publication, and research company with one purpose: to serve patients with a rare or chronic disease. We do this by connecting them with current, trusted, and relevant news and information. This content is delivered regularly and provided by actual patients as well as professional journalists, writers, editors, scientists, and experienced media executives. Our end customers are truly patients living with rare and chronic diseases. Visit www.bionews.com for more information. Bionews Vision To empower, inspire, and champion the patient voice as the preeminent resource that engages, informs, and connects the global rare and chronic disease community. Bionews Purpose We connect rare and chronic disease communities by providing a unified and distinctive space to engage, educate, and empower those affected by rare diseases to help improve patient health and quality of life. Values: R.A.R.E. - RESPONSIBILITY - ADVOCACY - RELATIONSHIPS - EMPOWERMENT

Job Opening Details: Bionews, a digital news company dedicated to creating communities for patients with rare and chronic diseases and their caregivers, is looking for members of the Bardet-Biedel syndrome or acquired hypothalamic obesity community to join our freelance staff of patient and caregiver columnists on Rare Obesity News, launching in May. A Bionews columnist is a patient or caregiver who shares about life with a rare or chronic disease. They write personal essays in a column format to inform, inspire, empathize, and advise. Their audience includes patients, caregivers, medical teams, and researchers. Columnists also write to a general audience interested in learning how to improve society's understanding and treatment of disease/disability communities. All columns are reviewed with a critical eye by professional editors who will work with columnists to smooth rough spots and help the columnist grow as a writer. This is a contract position. Please note you MUST be a member of the Bardet-Biedel syndrome or acquired hypothalamic obesity community in order to apply for this position. Responsibilities and Duties - Fulfill 1x weekly deadlines as agreed upon on hire. - Communicate efficiently with your managers and editors. - Submit 400-800 word drafts that adhere to Bionews policies and procedures. - Aside from exceptions, drafts should not take more than 45 minutes to edit. - Fulfill revisions as requested by editors in a timely manner. - Complete training assigned by Bionews HR. Experience Required - Prior experience with writing for an audience. - At least three months’ direct experience with having or caring for someone with Bardet-Biedel syndrome or acquired hypothalamic obesity. - Caregivers must be direct relatives, guardians, or spouses. Experience Preferred - Experience in being professionally edited for publication. - Experienced in generating a blog or column. - Participation in support groups, internet forums, or community groups relevant to Bardet-Biedel syndrome or acquired hypothalamic obesity. Knowledge Required - Fundamentals of how Bardet-Biedel syndrome or acquired hypothalamic obesity works. Knowledge Preferred - The content needs or wants of the Bardet-Biedel syndrome or acquired hypothalamic obesity community. Skills Required - A swift and independent learner of Internet technology. - A creative mind capable of regularly generating unique content that appeals to target audiences. - Time management. - Advanced creative writing. Skills Preferred - Experience in using WordPress for content creation. - Experience with the Slack communication app. Abilities Required - Internet access and use. - Native or fluent English writing and reading abilities. Who is Bionews? Bionews is a leading online health, science, publication, and research company with one purpose: to serve patients with a rare or chronic disease. We do this by connecting them with current, trusted, and relevant news and information. This content is delivered regularly and provided by actual patients as well as professional journalists, writers, editors, scientists, and experienced media executives. Our end customers are truly patients living with rare and chronic diseases. Visit www.bionews.com for more information. Bionews Vision To empower, inspire, and champion the patient voice as the preeminent resource that engages, informs, and connects the global rare and chronic disease community. Bionews Purpose We connect rare and chronic disease communities by providing a unified and distinctive space to engage, educate, and empower those affected by rare diseases to help improve patient health and quality of life. Values: R.A.R.E. - RESPONSIBILITY - ADVOCACY - RELATIONSHIPS - EMPOWERMENT

This description is a summary of our understanding of the job description. Click on 'Apply' button to find out more. Role Description Bionews, a digital news company dedicated to creating communities for patients with rare and chronic diseases and their caregivers, is looking for members of the narcolepsy community to join our freelance staff of patient and caregiver columnists on Narcolepsy News, launching in April. A Bionews columnist is a patient or caregiver who shares about life with a rare or chronic disease. They write personal essays in a column format to inform, inspire, empathize, and advise. Their audience includes patients, caregivers, medical teams, and researchers. Columnists also write to a general audience interested in learning how to improve society's understanding and treatment of disease/disability communities. All columns are reviewed with a critical eye by professional editors who will work with columnists to smooth rough spots and help the columnist grow as a writer. This is a contract position. Please note you MUST be a member of the narcolepsy community — patient preferred — in order to apply for this position. Responsibilities and Duties - Fulfill 1x weekly deadlines as agreed upon on hire. - Communicate efficiently with your managers and editors. - Submit 400-800 word drafts that adhere to Bionews policies and procedures. - Aside from exceptions, drafts should not take more than 45 minutes to edit. - Fulfill revisions as requested by editors in a timely manner. - Complete training assigned by Bionews HR. Qualifications - Prior experience with writing for an audience. - At least three months’ direct experience with having or caring for someone with narcolepsy. - Caregivers must be direct relatives, guardians, or spouses. Requirements - Experience in being professionally edited for publication. - Experienced in generating a blog or column. - Participation in support groups, internet forums, or community groups relevant to narcolepsy. Knowledge Required - Fundamentals of how narcolepsy works. Knowledge Preferred - The content needs or wants of the narcolepsy community. Skills Required - A swift and independent learner of Internet technology. - A creative mind capable of regularly generating unique content that appeals to target audiences. - Time management. - Advanced creative writing. Skills Preferred - Experience in using WordPress for content creation. - Experience with the Slack communication app. Abilities Required - Internet access and use. - Native or fluent English writing and reading abilities.

• Develop and maintain product roadmaps • Define MVPs and iterative release strategies that balance impact, feasibility, and speed • Translate stakeholder and business needs into structured requirements • Own delivery from concept → design → development → testing → launch • Write clear Epics, acceptance criteria, and Jira tickets • Drive cross-functional alignment with Engineering • Collaborate with Engineering on implementation for: WordPress (custom themes, ACF, custom blocks, taxonomies) • Create and manage epics, tasks, and workflows in Jira

• Develop, optimize, and maintain a large network of WordPress sites, ensuring scalability, security, and performance. • Write production-quality code across themes and plugins, including custom post types, Advanced Custom Fields (ACF), and custom integrations. • Collaborate with the technology team to implement and maintain analytics, advertising, and data integrations (GA4, Google Tag Manager, Google Ad Manager, etc.). • Troubleshoot and resolve issues across the WordPress stack, from PHP and MySQL to JavaScript and frontend rendering. • Contribute to architectural decisions, code reviews, and development standards to promote best practices across the platform. • Integrate dynamic content, third-party APIs, and interactive features within the WordPress ecosystem. • Leverage automation and develop AI-powered tools to improve workflows, content delivery, analytics, and platform capabilities. • Stay current with WordPress, web development, and AI trends, applying new ideas thoughtfully to production systems. • Partner cross-functionally with editorial, product, data, and operations teams to ensure technical solutions align with business and editorial goals.