Foundation Fighting Blindness

VisionWalk Assistant Remote Full Time Entry Level The VisionWalk Assistant provides administrative and operational support to ensure VisionWalk events across the country are planned and executed successfully. This position helps keep processes, materials, and records accurate and organized so that our Community Managers and VisionWalk Specialists can focus on delivering exceptional event experiences and meeting fundraising goals. VisionWalks are the Foundation Fighting Blindness’ signature fundraising event—a family‑friendly 5K walk that brings communities together to support sight‑saving research. VisionWalk raises essential funds to advance cutting‑edge treatments—including gene therapy, stem cells, retinal implants, and other emerging innovations—for the more than 10 million Americans affected by blinding diseases. Primary Responsibilities: The following are representative of the duties and responsibilities associated with this position and are not meant to be an all-inclusive list - Provide day-to-day administrative support for VisionWalks, including venue research, database entry, meeting coordination, and administrative setup, reporting, and invoice tracking/processing. - Support the preparation and distribution oof event-related collateral across channels, internally and externally, ensuring materials are accurate and aligned with communication standards. - Provide research and administrative support to internal field teams for funding opportunities. - Support in-kind donation outreach efforts as assigned in support of event or national program initiatives. - Provide excellent customer service and support - Support day-of volunteer coordination, including scheduling, communication, and day-of check-in support, in alignment with event plans. Minimum Qualifications: - Minimum of one year of administrative and/or event coordination experience in a busy, high‑volume environment. Experience with fundraising events is preferred. - Strong ability to handle administrative tasks, stay organized, and follow established processes and systems. - Experience using databases to enter, update, or track information (for example, systems like Virtuous or GoFundMePro). - Fully proficient in Microsoft Office Suite (Word, Excel, Outlook, and PowerPoint) - Excellent attention to detail; able to stay organized and manage multiple tasks and projects at the same time while supporting a team. - Strong people skills and clear communication—both in writing and speaking. - Works effectively with individuals from diverse backgrounds and with a range of physical or cognitive abilities. - Lifts and moves items weighing up to 30 pounds as part of the job duties. - Maintains a flexible schedule, including availability for occasional evening and weekend work. - Must have a valid driver’s license and a driving record that meets the Foundation’s insurance requirements. Position Specifics: - Location: Baltimore/Washington, D.C. area, Dallas, TX, Denver, CO or Chicago, IL - Work from home: HP or MAC laptop, monitor, printer, $120.00 monthly technology stipend provided. - Anticipated travel up to twice per month, including occasional weekend travel - Non-exempt, overtime eligible - Salary Range: $50,000–$55,000 This range reflects our anticipated compensation for the role. Final offers are determined based on several factors such as location, demonstrated skills, professional experience, and alignment with internal salary equity. - Annual Bonus Eligibility up to 3%

• Lead the midlevel giving strategy and program performance • Provide direction and oversight for a comprehensive Midlevel Giving strategy that delivers a personalized donor experience across a large portfolio • Establish clear priorities, segmentation, and consistent processes to drive strong retention, revenue growth, and a robust pipeline to Major Gifts • Manage and develop the Midlevel Giving team • Set clear goals and expectations, provide guidance and performance management, and reinforce consistent portfolio and moves-management practices across the team • Identify opportunities to leverage team strengths and advance continual improvement • Manage a personal portfolio of donors • Serve as a frontline fundraiser for a portfolio of approximately 100 midlevel donors, with accountability for retention, upgrades, and qualification • Execute disciplined donor engagement and moves management • Develop and implement individualized donor strategies, ensure timely follow-up and stewardship, and track actions and outcomes to move donors forward with intention and consistency • Plan and align donor touchpoints and solicitations • Develop and manage an annual, segmented calendar of cultivation, stewardship, and solicitation touchpoints for midlevel donors • Coordinate timing and messaging with Development, Marketing/Communications, Events, and Major Gifts to ensure alignment and effectiveness • Qualify and transition donors to Major Gifts • Identify donors with readiness and capacity, partner closely with Major Gifts to facilitate smooth transitions, and document donor context to support continuity and long-term relationship management • Strengthen cross-functional collaboration and operational rigor • Partner with internal teams to align messaging, cultivation opportunities, reporting, and data quality • Maintain accurate documentation in CRM to support shared visibility, institutional knowledge, and data-informed decision-making.

Purpose: The Clinical Research Lead helps drive the Foundation Fighting Blindness’ genetic testing program and My Retina Tracker® registry by coordinating with laboratory and scientific partners, managing data access requests, and contributing to strategic program evaluation while ensuring all work complies with contracts, standard operating procedures, and regulatory standards. Primary Responsibilities: The following are representative of the duties and responsibilities associated with this position and are not meant to be an all-inclusive list: - Serve as the primary point of contact for the sponsored genetic testing program, including management of relationships with laboratory partners and coordination of case identification activities - Use registry data to identify relevant cases that support sponsored genetic testing partnerships and fulfill data access requests from scientific collaborators. - Manage scientific partnerships, including contracting, data-sharing agreements, and ongoing relationship stewardship. - Build analytic datasets for scientific partnerships and data access requests, collaborating with internal team members who manage data infrastructure, cleaning, and import tools. - Contribute to the strategic evaluation of the genetic testing program, including analysis of program performance, partnership value, and potential alternative models to inform future funding and program decisions - Develop regular scientific publications and accessible research insights to be shared with registry participants and the broader community - Support the scientific activities of the My Retina Tracker® registry program, including annual review and update of data collection modules in collaboration with registry team members - Contribute to the development of policies and standard operating procedures, pertaining to data access, data privacy, and protection - Support annual priority and budget planning alongside the SVP and registry team. - Perform additional responsibilities as needed to support program success. Requirements: - Master of Science in Genetic Counseling (MSGC) or equivalent advanced degree in genetics, genomics, or a related life science field - Minimum 3 years of post-degree experience in a research, industry, or patient advocacy setting; experience with patient registries or sponsored genetic testing programs a plus - Demonstrated expertise working with genetic data, including variant-level analysis; familiarity with rare disease genetics and inherited retinal diseases preferred - Analytical mindset with an interest in program evaluation, strategic thinking, and evidence-based decision-making beyond day-to-day program operations - Strong interpersonal, verbal, and written communication skills; proven ability to work effectively with laboratory partners, scientific collaborators, and patient communities - Highly organized, detail-oriented, and able to manage multiple projects simultaneously in a fast-paced environment - Proactive, self-directed, and comfortable working independently in a remote setting - Proficiency with Microsoft Office; experience with research databases preferred Position Specifics: - Full-time (40 hours/week); Exempt; No Direct Reports - Work Environment: This is a work‑from‑home position, but not a “work from anywhere” role. Candidates must reside in the DC/MD region or the NC Triangle area to support collaboration and occasional in‑person activities. - Starting Salary: $112k-$125k annually. The range considers a wide range of factors that are considered in making compensation decisions, including but not limited to: geographic markets, skill sets, experience, and internal equity to comparable roles. - Monthly technology stipend provided - Annual incentive bonus eligible