Cure HHT

**Position Overview** The Manager, Patient Education & Events leads the development and delivery of Cure HHT’s educational programming and community event experiences that inform, empower, and connect the HHT community. This role designs and executes both virtual and in-person educational initiatives — including webinars, patient conferences, and learning resources — that transform medical information into accessible, actionable knowledge for patients, caregivers, and healthcare providers. The Manager partners cross-functionally with the Senior Manager, Community Engagement, the Marketing & Communications team, as well as with Research, Clinical, and Philanthropy teams, to create a unified, mission-driven approach that amplifies awareness, strengthens trust, and deepens engagement.

Position Overview The Manager, Patient Education & Events leads the development and delivery of Cure HHT’s educational programming and community event experiences that inform, empower, and connect the HHT community. This role designs and executes both virtual and in-person educational initiatives — including webinars, patient conferences, and learning resources — that transform medical information into accessible, actionable knowledge for patients, caregivers, and healthcare providers. The Manager partners cross-functionally with the Senior Manager, Community Engagement, the Marketing & Communications team, as well as with Research, Clinical, and Philanthropy teams, to create a unified, mission-driven approach that amplifies awareness, strengthens trust, and deepens engagement.   Key Responsibilities Educational Strategy and Program Development - Develop and implement a comprehensive annual education plan that advances Cure HHT’s mission to Find, Treat, and Cure through accessible and relevant learning opportunities. - Design and produce webinars, virtual workshops, and online educational series tailored to patients, caregivers, and providers. - Collaborate with medical experts, the Scientific Advisory Board, and internal teams to ensure accuracy, clarity, and accessibility of educational content. - Partner with the Marketing and Communications team to translate complex information into engaging, easy-to-understand learning materials. - Evaluate the effectiveness of educational programs using participation metrics, feedback surveys, and impact assessments. - Collaborate with clinical experts, the Scientific Advisory Board, and the Senior Manager, Community Engagement to develop accurate, accessible, and patient-centered educational materials, webinars, and conference sessions that meet the needs of the HHT community. - Revamp and reimagine regional patient conferences, offering new and engaging formats, and driving increased community participation across the U.S.   Event Management and Experience Design - Lead the planning, coordination, and execution of Cure HHT’s National and Regional Patient and Physician Conferences, ensuring exceptional program quality and participant experience. - Plan and deliver regional patient events that expand access to education and strengthen local community ties. - Manage event logistics, budgets, vendors, speakers, and volunteers, ensuring seamless coordination across departments. - Collaborate with the Senior Manager, Community Engagement, to feature community voices, patient stories, and ambassador participation in events. - Partner with the Philanthropy team to integrate recognition opportunities and sponsor visibility, ensuring all sponsor content is consistent with brand and mission guidelines (without managing direct solicitations).   Content and Resource Development - Collaborate with HHT clinical experts and oversee creation and updates of educational resources, including brochures, toolkits, guides, and digital learning materials for patients, families, and providers. - Collaborate with the Marketing and Communications team to maintain an engaging and accurate education section of the Cure HHT website. - Audit and update educational resources and incorporate new and timely information in a rapidly growing environment translating to diverse communities. - Identify new topics, tools, and delivery formats to enhance accessibility and engagement for diverse audiences. - Ensure all materials reflect Cure HHT’s voice, branding, and commitment to diversity and inclusion.   Collaboration and Partnership Building - Work closely with the Senior Manager, Community Engagement to align educational content with community needs and emerging trends. - Partner with the Director of Research and clinical experts to coordinate research roundtables, provider workshops, and participation in industry and medical conferences. - Serve as a key liaison for Cure HHT’s participation in external conferences such as NORD, ASH, and Rare Disease Week, supporting brand visibility and thought leadership. - Build and maintain relationships with industry associations, professional societies, and allied organizations to expand Cure HHT’s reach, enhance educational programming, and foster collaborative partnerships. - Collaborate with cross-functional teams (Marketing, Philanthropy, Research, Programs) to ensure educational initiatives align with broader organizational goals. - Represent Cure HHT as a knowledgeable ambassador at patient and professional events, fostering collaboration and trust within the rare disease community. - Capture and apply key learnings from external conferences, collaborations, and peer organizations to strengthen Cure HHT’s educational programming, ensuring content remains current, relevant, and responsive to community and clinical advancements.   Measurement, Evaluation, and Reporting - Track and report participation, satisfaction, and impact metrics for all educational programs and events. - Use data insights to identify gaps and opportunities to expand reach and improve quality. - Maintain accurate records in Salesforce or similar CRM to support evaluation, reporting, and strategic planning. - Partner with the Marketing and Philanthropy teams to develop post-event impact summaries and communication materials for stakeholders and donors.

**Key Responsibilities** **Digital Marketing & Campaign Execution** - Execute and manage the scheduling and delivery of digital marketing campaigns aligned with approved organizational priorities that advance awareness, community engagement, and fundraising goals. - Manage and optimize Cure HHT’s digital platforms, including email marketing (Mailchimp/MCAE), website (WordPress), and social media channels. - Collaborate with the Philanthropy, Education & Community Engagement, Research, National Healthcare Programs, and Therapeutics teams to execute giving campaigns, peer-to-peer drives, research, and awareness initiatives. - Implement campaign objectives, calls to action, and audience targeting as defined in campaign briefs and strategic plans. - Manage production and logistics for all organizational direct mail campaigns, including fundraising appeals, newsletters, and clinical care and research program mailers, ensuring alignment across print and digital channels. **Analytics, Data, and Optimization** - Monitor and analyze marketing metrics across all channels (email, website, social, paid ads), producing monthly performance reports for leadership. - Monitor and report on campaign performance, providing data-informed insights and recommendations to support optimization decisions led by senior marketing leadership. - Manage SEO, Google Analytics, and digital advertising (e.g., Google Ad Grants, Meta Ads) to expand reach and drive conversion. - Support the development and maintenance of marketing performance dashboards by preparing data, reports, and summaries for leadership review. **Website & Email Management** - Manage day-to-day website updates and content publishing in alignment with brand standards and strategic direction. - Manage website updates, landing pages, and blog posts in collaboration with the Content & Brand Strategy Manager. - Execute email marketing campaigns, list management, and automation in alignment with approved strategy and messaging frameworks. - Ensure all digital content follows accessibility and brand standards. **Cross-Functional Collaboration & Support** - Partner with the Sr. Manager, Content & Brand Strategy to deploy storytelling content through digital channels and social campaigns. - Support the Manager, Patient Education & Events, and Sr. Manager, Community Engagement by promoting programs, webinars, and events through integrated digital and print campaigns. - Collaborate with Philanthropy and program teams to align digital execution with campaign timelines and messaging direction. - Maintain an organization-wide content calendar in partnership with the Sr. Manager, Content & Brand Strategy. **Systems, Tools, and Vendor Management** - Manage assigned vendor relationships in alignment with approved scopes of work and budgets. - Identify system needs and provide recommendations for tools or enhancements for leadership review and approval. **Continuous Improvement** - Stay current with emerging trends in digital marketing, nonprofit communications, and analytics. - Test and pilot approved digital tactics to improve engagement and conversions. - Regularly review KPIs to identify opportunities for innovation and growth.